New York Times: Patients with Rare Diseases

New York Times: Patients with Rare Diseases

I found an interesting multimedia story package on the New York times website about patients who have rare health conditions and the struggles that many of those people face on a daily basis. Some individuals discuss their hardships with their disease and diagnosis, while others talk about access to health care. The package uses audio interviews, photo slideshows, and interactive links across the bottom of the page that allows the user to find out more through ‘related multimedia’.

The package overall is easy to navigate because the audio begins as soon as you enter the page. The user has the option to click through the photo slideshow, or can just sit back as the photos rotate with the speaker. The different kinds of media used make the story very multidimensional, and I can tell that the story is a series of profiles of people who have rare diseases because the photographs show me how some of the patients administer medication and deal with their condition in their own environment.

The design elements reflect the content because it is very clean, clear, and also automatic. The content is about how man individuals are breaking though their difficult experiences from the past and are now seeing how to deal with their disease clearly. The layout of the package is clear and automatic in that the pieces begin rolling with visual and audio slides right away. A user can engage with the multimedia if they wish, or they just the the stories rotate on the computer screen as they watch. 

There is also a link to ‘Join the Discussion’ where readers can share their own stories and experiences about this topic, almost in a support group type of conversation.

-Stef Kienstra


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2 Responses to New York Times: Patients with Rare Diseases

  1. I checked out your chosen series on The New York Times website myself. I have to agree that the series is easy to navigate and that is good thing. The audience has control over what audio they want to listen to. Plus, they can click through the photos at the same time. The photos give the audience even more easy control on how to navigate that content. I was able to listen to the audio clips as well as visually see it. Then, I thought why not just put the all the content together in audio slideshow. However, the audio clips are longer and there are fewer photos, which in this instance separating the two works! The reporters who worked on this series did a good job by picking the mediums of audio, photo and text to tell this story – good multimedia-interactive storytelling.

  2. abbottjm says:

    This is part of an incredible series the New York Times has done for some time. One that particular struck me as a perfect example of a story told in “patient voices” is the one on eating disorders.
    Another one is one obsessive-compulsive disorders:
    Bipolar disorders
    This remarkable feature has also covered autism and schizophrenia.

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